Discussion in 'Prayers & Smoke' started by Wasp, Feb 4, 2019.
Continued prayers! Have you seen an endocrinolgist?
Yes, but not about this. I have one checking my parathyroid levels, calcium, vitamin D levels (all related to one another).
My prayers are with you.
I have had pt's with Lyme disease. They would come in daily, to my ER for IV Ceftriaxone. Now we will do it in the office of the family health team, or can set someone up at home. For accessing PICC's and central lines, along with maintenence I would not want to see a layperson doing that without some good training and initial supervision. There may also be the option of setting up a CAD pump to cut down on nursing care. Where I work specially trained nurses insert PICCS, but another option is a port o cath, which requires much less maintenance than a PICC, but is inserted in a surgical suite. I'm not sure of your history and what has been done, or how they treat people in the US medical system, so I'm not sure what your options are.
I would also suggest, if possible, to work with other health care disciplines, if you are not already, and spiritual counselling, if you are in agreement with that.
I'm not sure how things work in the USA but are there nurses that do home visits? I do them all the time myself for various things, and in my clinic, I give IV meds quite often. Whatever your treatment is I hope it is effective.
My heart and prayers go out to you.
Prayers continue on your behalf Brother Wasp.
Talk to your doctor about taking Vitamin K with that Vitamin D to prevent calcification ("hardening of the arteries"). Unfortunately, many doctors don't know about this so make sure that you read up on it and compel him to do so, too.
Don't forget about Turmeric as an anti-inflammatory and for EB.
Remember, your mind is one part of your body that you can control.
Prayers sent for you. It sounds like you may finally get some relief. Hang in there.
May God's grace heal you from the top of your head to the bottom of your feet!!!
Godspeed on your recovery friend!
Prayers for answers and health restored!
Smoke and prayers still going up buddy.
Keeping you in prayer brother, your diligence is admirable.